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Latest News

Your Resource for the Latest News!

We seek to keep you updated on the latest Lupus News, Research, Press Releases and Clinical Trials.


Increasing Awareness, 100 women at a time
by Lisa Bilodeau

Lisa Bilodeau, a lupus warrior and active community member, addressed 100+ Women Who Care Burlington and Hamilton-Wentworth to raise awareness about lupus. She shared her personal journey with the condition, highlighting its challenges and the need for increased research and funding. Lisa emphasized the importance of systemic research on lupus, which can benefit other autoimmune and systemic diseases. Both chapters of 100+ Women Who Care supported Lupus Ontario, funding a new support group and the Anne Matheson Biobank. Lisa expressed gratitude for the opportunity to raise awareness and hopes for a future without lupus.

Lupus Ontario is now an official Affiliate Member of the CSPA

The Canadian Skin Patient Alliance (CSPA) is a national non-profit organization dedicated to advocate, educate and support Canadians living with skin diseases, conditions, and traumas. We support and collaborate with Canadian patient groups and organizations that deal with specific skin disorders. By working together, we advocate for the needs of skin patients across the country and provide a broad range of education and support.

2024-2025 Geoff Carr Lupus Fellowship

The annual Fellowship is designed to provide advanced training to a rheumatologist specializing in lupus at an Ontario Lupus Clinic. The Lupus Fellow will follow patients at an accredited lupus clinic, supervise patient care and education, and become involved in clinical research. The stipend attached to the Geoff Carr Lupus Fellowship will be $72,000 CAD for one year. Candidates must arrange their own place of training at an accredited Lupus Clinic in Ontario.

The successful candidate will likely have completed his/her core training in Internal Medicine or Pediatrics and have completed a minimum of two years in rheumatology.

Awards are made on the recommendation of Arthritis Society Canada’s review panel. Lupus Ontario administers the Fellowship.

New data on SAPHNELO, a promising biologic for lupus

SAPHNELO data show patients are more likely to achieve and sustain remission in systemic lupus erythematosus compared to standard therapy alone

In Loving Memory of Honey Agar

With heavy hearts, we share the news of the passing of Lupus Ontario’s founder, Honey Agar, on September 30th, 2023.

 

Learn more about our amazing founder.

COVID-19 TRIAL NOW ENROLLING PARTICIPANTS

The study is open to adults who

  • Tested positive for COVID with symptoms starting within the last 5 days and
  • Aged 18–49 years with chronic condition(s) or 50+ years regardless of health status

Eligible participants will

  • Take a COVID medication approved by Health Canada or follow public health advice on COVID
  • Complete an online diary from Day 1 to 14
  • Complete a survey on Day 21, 28 and 90 and Week 36
  • Receive $30 for each follow-up

Participation is voluntary.

Call for Abstracts

Have you heard? The 2023 Lupus Ontario Annual Symposium Call for Abstracts has launched!

The theme this year is Caring for All. Known as the disease of a thousand faces, we will highlight the disparities in diagnosing and treating lupus including:

  • Ethnicity and issues of race in lupus diagnosis
  • Caring for lupus patients in northern and rural Ontario
  • Growing-up with lupus: Transition from pediatric to adult care
  • Improving Access and Enhancing Care: Physician Education and Best Practices
  • And more!

Lupus Awareness Month

May is Lupus Awareness Month, with May 10th being declared Lupus Awareness Day in Ontario. Take a look at what is being illuminated to spread awareness in Ontario. 

Find our Media Kits with resources to help spread awareness. 

 

Walk For Lupus Ontario Media Kit -

Social Media Posts, Captions, Video and Articles for you to share! 

12-year-old sisters start business supporting Pediatric Lupus Clinic

In April and May proceeds will support the Pediatric Lupus Clinic at SickKids Hospital

 

 

EVUSHELD™ receives Health Canada approval

 EVUSHELD™ RECEIVES HEALTH CANADA APPROVAL FOR PRE-EXPOSURE PROPHYLAXIS (PREVENTION) OF COVID-19 IN IMMUNE-COMPROMISED INDIVIDUALS

Geoff Carr

Tribute For Dr. Urowitz

Honouring Dr. Dr.Murray B Urowitz on his retirement! Thank you for all you have done for the Lupus Community.

SHINGRIX approved in Canada for adults at increased risk of shingles

GSK PRESS RELEASE – SHINGRIX approved in Canada for adults at increased risk of shingles due to immunodeficiency or immunosuppression

 

GOC signs new COVID-19 antibody therapy agreement

PRESS RELEASE – from Public Services and Procurement Canada.