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Your Resource for the Latest News!
We seek to keep you updated on the latest Lupus News, Research, Press Releases and Clinical Trials.
Petition for Biologics
This Lupus Ontario petition is advocating to have the Ontario government approve all biologics approved by the Federal Health Agency (CADTH) added to the Ontario Drug Formulary under the Limited Use code rather that the Exceptional Access Program. The Limited Use code eliminates the administrative burden for rheumatologists and provides faster access for lupus patients.
We need your support to help fasten this process. Sign the petition and MAKE A DIFFERENCE!
- Click here to read the petition
- Print the form and sign it
- Send it to Lupus Ontario: 285 Taunton Road East Suite 4438, Oshawa, ON L1G 3V2,Canada
Petition for Biologics
SESSION 1: 22nd October, 7-8PM EST,
EULAR Guideline Revisions
In this session, Dr. Laura Whitthall Garcia will delve into the European Alliance of Associations for Rheumatology (EULAR) and its crucial role in setting guidelines for lupus. She will discuss the current EULAR guidelines for lupus, recent changes to these guidelines, and the reasons behind these updates. Additionally, the session will explore how these guidelines are applied in diagnosing and treating lupus to ensure effective and standardized patient care.
SESSION 2: 22nd October, 8-9PM EST
Lupus Types Expanded
In this session, Dr. Murray Urowitz will provide a brief recap of Types 1 and 2 lupus, followed by an in-depth exploration of lupus types 3, 4, and beyond. He will discuss the implications of these classifications on ongoing lupus patient treatment and provide insights on how patients can effectively advocate for themselves as their disease evolves. The session aims to equip lupus patients with the knowledge and strategies to engage proactively with their care practitioners.
SESSION 3: 23rd October, 7-8PM EST
Biologics Explained
In this session, Dr. Amanda Steiman will demystify biologics by explaining what they are and how they function in treating diseases. She will highlight the differences between biologics and other treatment options, detailing how patients should prepare for biologic treatment, including necessary tests, vaccines, and potential side effects. Additionally, Dr. Steiman will compare infusion and subcutaneous methods, providing guidance on what patients can expect from each approach.
SESSION 4: 23rd October, 8-9PM EST
CAR T-Cell Therapy and Upcoming Treatments
In this session, Dr. Mark Matsos will provide an overview of emerging treatments for lupus, with a focus on CAR T-Cell Therapy. He will explain the fundamentals of CAR T-Cell Therapy and discuss how this innovative approach could revolutionize the treatment landscape for lupus patients. The session will offer a glimpse into the future of lupus care, highlighting the potential benefits and transformative impact of these new therapies.
Increasing Awareness, 100 women at a time
by Lisa Bilodeau
Lisa Bilodeau, a lupus warrior and active community member, addressed 100+ Women Who Care Burlington and Hamilton-Wentworth to raise awareness about lupus. She shared her personal journey with the condition, highlighting its challenges and the need for increased research and funding. Lisa emphasized the importance of systemic research on lupus, which can benefit other autoimmune and systemic diseases. Both chapters of 100+ Women Who Care supported Lupus Ontario, funding a new support group and the Anne Matheson Biobank. Lisa expressed gratitude for the opportunity to raise awareness and hopes for a future without lupus.
Lupus Ontario is now an official Affiliate Member of the CSPA
The Canadian Skin Patient Alliance (CSPA) is a national non-profit organization dedicated to advocate, educate and support Canadians living with skin diseases, conditions, and traumas. We support and collaborate with Canadian patient groups and organizations that deal with specific skin disorders. By working together, we advocate for the needs of skin patients across the country and provide a broad range of education and support.
2024-2025 Geoff Carr Lupus Fellowship
The annual Fellowship is designed to provide advanced training to a rheumatologist specializing in lupus at an Ontario Lupus Clinic. The Lupus Fellow will follow patients at an accredited lupus clinic, supervise patient care and education, and become involved in clinical research. The stipend attached to the Geoff Carr Lupus Fellowship will be $72,000 CAD for one year. Candidates must arrange their own place of training at an accredited Lupus Clinic in Ontario.
The successful candidate will likely have completed his/her core training in Internal Medicine or Pediatrics and have completed a minimum of two years in rheumatology.
Awards are made on the recommendation of Arthritis Society Canada’s review panel. Lupus Ontario administers the Fellowship.
New data on SAPHNELO, a promising biologic for lupus
SAPHNELO data show patients are more likely to achieve and sustain remission in systemic lupus erythematosus compared to standard therapy alone
In Loving Memory of Honey Agar
With heavy hearts, we share the news of the passing of Lupus Ontario’s founder, Honey Agar, on September 30th, 2023.
Learn more about our amazing founder.
EVUSHELD™ receives Health Canada approval
EVUSHELD™ RECEIVES HEALTH CANADA APPROVAL FOR PRE-EXPOSURE PROPHYLAXIS (PREVENTION) OF COVID-19 IN IMMUNE-COMPROMISED INDIVIDUALS
