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Call for Abstracts

Have you heard? The 2023 Lupus Ontario Annual Symposium Call for Abstracts has launched!

Our annual event brings together our diverse Ontario lupus community including:

  • Rheumatologists and Family Physicians
  • Nurses & Allied Health Practitioners
  • Researchers, Patients & Caregivers

The theme this year is Caring for All. Known as the disease of a thousand faces, we will highlight the disparities in diagnosing and treating lupus including:

  • Ethnicity and issues of race in lupus diagnosis
  • Caring for lupus patients in northern and rural Ontario
  • Growing-up with lupus: Transition from pediatric to adult care
  • Improving Access and Enhancing Care: Physician Education and Best Practices
  • And more!

Abstracts are being accepted for:

Panel & Discussion presentations:

Panel and discussion presentations provide a relaxed format where presenters exchange ideas and information in discussion for attendees. Discussions can range from the struggles of diagnosing lupus as a physician, research supporting treatment options and/or target a sub-group of the lupus community such as university students. Duration is a maximum of 30 minutes with a maximum of 5 presenters on the panel.

Oral Presentations:

Sessions up to 15 minutes in length for a maximum of 2 presenters to share experience, knowledge, research.

Poster Presentations:

Poster presentations allow for one-on-one conversations between poster authors and symposium attendees. Poster presentation will be on display in our virtual Exhibitor Hall where authors and attendees can also interact virtual to exchange ideas, research and more!

Date of Symposium: October 21st, 2023
Deadline for symposium submissions: August 11th, 2023

If you cannot present at the symposium in October but still would like to submit an abstract, we would love to invite you to submit and be part of our webinar and/or podcast events!

Please submit abstracts to: media@lupusontario.org
Email subject line: “2023 Abstracts”

Partner with us. Volunteer with us. Be part of the cure.

ABSTRACT SUBMISSION INSTRUCTIONS
  • Abstracts will be accepted in English;
  • Headings: Abstract title, Authors and Affiliations, Introduction/Background, Objectives, Methods, Results, Conclusion, and References;
  • The total length of the abstract should not exceed 750 words (word limit applies to the Introduction, Objectives, Methods, Results, and Conclusion; Title, Authors and References are excluded from the word count). Text only (no graphics, images or tables are allowed in the abstract body);
  • Supporting files (up to 3) – only images (jpg, jpeg, or png with resolution 300 ppi, up to 10 MB) and videos (WMV video file – up to 50 MB) will be accepted for uploading.
Posted by Hajra Batool

Walk for Lupus Ontario Media Kit

Walk for Lupus Ontario Media Kit

August 20th, 2022:  Support the 21st annual Walk for Lupus Ontario, our largest fundraising event of the year. This year we hope to raise 100,000 to help fund support groups, lupus clinics and research including the support of the NEW Anne Matheson Biobank.

 

Download Media Kit or Save and Share posts, video or articles from below. 

Download Media Kit

Social Media Posts

To make sharing as simple as possible, we have designed posts with caption for you to share to your networks! 

Informational Video

Share to spread the message! 

Walk for Lupus Ontario

Provided by Lupus Ontario

Walk for Lupus is Lupus Ontario’s largest provincial fundraising and awareness event. It began over 21-years ago with a single walk (previously Walk a Block) and has grown into an event involving thousands of participants throughout Ontario. Over the years, the Walk for Lupus has raised over a million dollars to fund the Lupus Ontario Geoff Carr Research Fellowship, support and education programs for lupus patients and their families and advocacy projects aimed at improving programs and services for lupus patients.

The 21st Walk for Lupus Ontario will be held both virtually and in person across the province on Saturday August 20, 2022!

This event will be hybrid: you can participate, (walk, run, bike, crochet, or any activity of your choice), virtually or in-person at the time and day of your liking. While the majority of events will take place on August 20, you have the freedom to choose the best date/time for you and your team. There are a lot of options available for all types of able-bodied people!

Join a team in your area or start one of your own! Teams will be sent Lupus Ontario wristbands, and there are incentives for fundraisers.

Lupus is an autoimmune disease where the body attacks itself causing inflammation, pain, and possible organ damage. Five million people suffer from lupus globally and there is currently no cure. Nine out of ten lupus patients are women, usually diagnosed between the ages of 15 and 45. Each year as we gather for the Walk for Lupus Ontario, we create awareness of this life altering and sometimes fatal disease. By discussing and fundraising for lupus research, Lupus Ontario hopes to someday find a way to live a Life Without Lupus. Visit www.lupusontario.org to register or to find out more about Lupus Ontario.

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Marketing (Summer student position)

Marketing (Summer student position)

This summer student position is under the Canada Summer Jobs program.

  • $20/hour
  • 35hrs/week
  • Virtual Position
  • 8-week position

Position Responsibilities, assist with the following:

  • Creation of digital material and social media content (Canva Pro)
  • Creation of fundraising and marketing campaigns
  • Creation of posts required by the Public Awareness and Education Committee
  • Creation of posts required for all fundraising events, support meetings and webinars
  • Assist with the design of the monthly Lupus Link newsletter (Mailchimp)
  • Assist with the mailing of the quarterly Lupus Link Newsletter.
  • Research and write articles and content on various topics
  • Ensure website, social media platforms and email campaigns are aligned with Lupus Ontario’s mission and values
  • Assist with WALK for Lupus Ontario event (liaise and provide support to community walk organizers, attend in person events etc.)
  • Assist and attend HOPE volleyball on June 24th
  • Execute the marketing plan for the Walk for Lupus Ontario through social media, advertising, TV and radio
  • Lupus Ontario website management (i.e. updating Support Group Meeting links, webinar links, etc.)

Minimum Requirements

  • Full-time enrollment at a post-secondary educational institution during preceding academic year
  • Will be returning to full-time enrollment at a post-secondary institution for the upcoming academic year
  • Previous work experience in a related field is considered an asset
  • Required to attend some weekend and evening meetings/in person events
  • Ability to create fundraising and marketing campaigns and opportunities
  • Excellent verbal and written communication skills including grammar
  • Enthusiastic, positive, creative attitude
  • Good problem solver
  • Experience with Microsoft Office
  • Experience in using WordPress, MailChimp and Canva Pro
  • Video editing skills
  • Able to work independently
  • Knowledge of Microsoft Office and WordPress
  • Experience in the not-for-profit sector an asset
  • Drivers Licence and vehicle would be an asset

To apply for this position, email your cover letter and resume to info@lupusontario.org.  We thank all applicants, but only those selected for an interview will be contacted. Deadline to Apply is May 9th at 11:59 p.m. 

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Media Kit 2022

Media Kit 2022

Lupus Awareness Month

May is Lupus Awareness Month, with May 10th being both World Lupus Day (internationally) and Lupus Awareness Day in Ontario. In an effort to raise awareness Lupus Ontario has created a media kit containing:

Lupus Ontario Overview Article:

This article describes a brief summary of lupus, an autoimmune disease, then goes on to briefly explain the efforts Lupus Ontario in making to improve the lives of those living with lupus, its history and research accomplishments.

Lupus Warrior Article:

Describes the Lupus Journey of a Lupus Warrior, Brynn Clark, and seeks to spread the word about Lupus Awareness Day.

Graphics:

      • May Lupus Month Graphic
      • Lupus Ontario Group Photo

Complete Media Kit

Download the complete Media Kit PDF. 

Lupus Ontario Overview

Written by Brent Leonard, Director, Lupus Ontario

Lupus is a complex autoimmune disease that can impact virtually any organ of the body – skin, kidneys, brain, heart, eyes, and others – with profound life altering and life limiting consequences. Little is known about the disease as each patient presents with a differing array of symptoms. Ninety percent of patients are female, in the prime years of their life. 

Lupus Ontario is the largest provincial organization in Canada geared toward providing support, awareness, and education of lupus to patients, caregivers, and health practitioners alike. Since its inception in 1978 Lupus Ontario has been instrumental in development of dedicated Lupus Clinics in Ontario and an ardent supporter of innovative research.  

 In 1987 armed with determination to improve the lives of those living with lupus, the founders of Lupus Ontario including Honey Agar and devoted volunteers, set out to raise $1M to create and launch a program that would be a world first – the Lupus Databank Research Program at Toronto Western Hospital. The Lupus Databank forms the foundation of lupus research through to the present day and was spearheaded by the globally renowned Dr. Murray Urowitz who continues to practice and conduct research. The Lupus Ontario commitment to ground-breaking research thrives today in exciting areas including the newly formed Lupus Ontario Anne Matheson Biobank, headed by Dr. Konstantinos Tselios. 

 A true volunteer-based organization, Lupus Ontario continues to support research and novel approaches to foster discoveries and hope for lupus treatments. A vital component of this initiative is the support Lupus Ontario provides to the physician community. Through the years, Lupus Ontario has established six accredited Lupus Clinics in the Province of Ontario where those living with lupus and their caregivers can seek treatment and support. Crucial to understanding any disease is the commitment of dedicated physicians and researchers, the same is true in the quest to demystify the intricacies of lupus. This is the motivation behind the Geoff Carr Lupus Ontario Fellowship. 

 Since its creation in 1990, the Geoff Carr Fellowship provided by Lupus Ontario – in honour of the late President of the Association of Commercial Travelers, instrumental in funding the fellowship program – has trained more than 30 Rheumatologists worldwide to specialize in lupus and has motivated each recipient to delve into lupus-based research. The program has funded specialized training through grants totalling more than $2M.  

 As the Databank, Biobank and Geoff Carr Fellows continue to form the bedrock of lupus research initiatives, Lupus Ontario has become involved in advocacy efforts to bring light to an insidious, complicated disease. These efforts helped support the 2021 proclamation by the Government of Ontario proclaiming May 10th as Lupus Awareness Day in the province – the same date recognized globally as World Lupus Day. With awareness dedicated to this single day, and to the month of May as a whole, Lupus Ontario and their partners strive to continue to bring hope to those living with, caring for and treating the disease; shedding light on the causes of lupus and ultimately finding a cure. 

 The astonishing impacts Lupus Ontario has been able to catalyze are direct results of dedicated partners, volunteers, and physicians. A true volunteer-patient-based organization, our goal has remained constant since 1978: Life Without Lupus.  

 Partner with us. Volunteer with us. Be part of the cure. 

 

Warrior Brynn Clark

Written by Lisa Bilodeau, Board Member, Lupus Ontario 

April 2022 

“I DIDN’T LIKE THE HAND I’D BEEN DEALT IN LIFE, SO I CHANGED THE GAME.”  Brynn Clark, Lupus Warrior  

“I remember it like it was yesterday, not back in 2010. A beautiful September day. ‘I don’t know how to say this, exactly, but you have lupus,’ my doctor informed me. It had taken years…YEARS…to be able to finally have a diagnosis of symptoms that could have been explained away by any part of my made-for-tv-movie kind ’o’ life: extreme fatigue (the ‘bone-crushing’ type kind), deep pain in my muscles and joints…I was 36, working full time, and a mother of five. Of course, I was fatigued. Of course, I was exhausted.” 

 Brynn Clark has become a lupus warrior and advocate in the years since her diagnosis, hoping to bring awareness to this autoimmune disease, and encourage people not to dismiss their symptoms. 

Lupus is a chronic, complex autoimmune disease that affects at least 5 million people worldwide. More than 90% of people with lupus are women; lupus most often strikes during the childbearing years of 15-45. Black, Latinx, Asian and Indigenous people are two to three times at greater risk than Caucasians. In lupus, the immune system, which is designed to protect against infection, creates antibodies that can attack any part of the body including the kidneys, brain, heart, lungs, blood, skin, and joints.  

 “For me, lupus means the full ‘systemic lupus erythematosus’. I have had three cardiac infarctions. I have kidney damage. I have had pleurisy,” Brynn recounts how difficult it has been to have her body fight against itself daily. 

 Lupus is a serious autoimmune disease, which means your immune system attacks healthy cells by mistake. It’s also chronic, meaning it lasts a long time and requires long-term treatment. Lupus is one of the most complex autoimmune diseases there is. It affects each person differently with symptoms that are sometimes hard to detect and differ from patient to patient, which is why it is called “the disease with a thousand faces”. This makes the disease hard to diagnose and arriving at effective treatments very challenging. For the vast majority of people going through life with lupus, effective treatment can reduce symptoms, reduce inflammation, and maintain normal bodily functions. It is therefore critical to understand and manage symptoms. 

 May 10th is Lupus Awareness Day, which serves to call attention to the impact that lupus has on people around the world. Lupus Ontario is joining groups from around the world that have united to lead the annual World Lupus Day observance on 10 May 2022.  

Now in its 19th year, World Lupus Day will focus on the need for heightened public awareness of lupus, improved patient healthcare services, increased research into the causes of and desperately needed treatments for lupus, enhanced physician diagnosis of lupus, and better epidemiological data on lupus globally.  

Lupus affects more than just the person with the disease — it also impacts their family, friends, and work colleagues. Still, it is widely under-recognized as a global health problem by the public, health professionals, and governments, driving the need for greater awareness. Early recognition, diagnosis and treatment of lupus help to slow the debilitating effects of the disease. However, lupus is often difficult to diagnose because symptoms frequently mimic common illnesses. Increasing awareness of lupus will save lives.  

Brynn shares that “what I needed in the start of my lupus journey was to find somewhere to read about other patients’ experience with lupus. What I did, was start a blog, ‘Lupus Interrupted’. It was meant as a place to share my journey for family and friends. My family didn’t read it. Who read it? People from all over the world who wanted a real conversation about what it is like living with this disease. I wrote to become a patient advocate. I wrote to highlight a lupus journey filled with hardships, but rife with positive actions. I wrote for Stanford University’s medical blog, ‘Scope’, to illustrate to new doctors what living with lupus really feels like.” 

Lupus Ontario is the largest Canadian provincial organization focused on improving the lives of lupus patients and their families. Lupus Ontario’s mission is to provide vital support, education, awareness, advocacy and research through the fundraising efforts of our staff and volunteer community to help those with lupus live longer, healthier and better lives. Brynn Clark joined Lupus Ontario as a volunteer and Board Member to continue her impact of advocacy. 

“I didn’t like the hand I’d been dealt in life, so I changed the game. My epiphany came when I realized that at the end of the day, it’s only my choices that will determine whether this life will be remembered and measured in pain, or in memories,” says Brynn. “I am an on-my-own mother of five, managing the best that I can with what I’ve been given. My wish for my children is that they be educated on patient rights, and compassionate to the journey of others, no matter their circumstance or afflictions.” 

Join Lupus Ontario’s effort to increase public awareness and understanding of lupus by promoting the annual World Lupus Day observation in your community. 

 
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12-year-old sisters start business supporting Pediatric Lupus Clinic

Welcome to Two Charmed! This small business is run by Ashley and Melissa, twin 12 year old sisters with the help of me, their mom Diana.

Two Charmed began for a reason. My girls are trying to a find way to help others while making a difference in their community.

From their love of creating, came custom and handmade beaded bracelets and so much more! They are also selling with a purpose. They will be donating part of proceeds from the sale of their jewellery to local charities and hospitals monthly and/or bi-monthly.

Another reason for doing this, it helps Ashley work through anxieties she faces for various reasons, from what is going on in the world around while dealing with her own battles. This helps both girls to be creative and alleviate anxieties while knowing they are making beautiful handmade jewellery and hoping to make a difference in the community.

For the months of April and May, we will be donating a portion of the proceeds from our sales to the Pediatric Lupus Clinic in Sick Childrens Hospital. Lupus has inflicted and  affected our family as both my girls are patients of the Pediatric Lupus Clinic and I too, have Lupus. We have created beaded bracelets with and without a butterfly charm in various shades of purple to show support of this disease and the Lupus community. They can be worn separate or as a stack. Together, we are Lupus Strong!

Please visit us @two_charmed_ on Instagram, the Two Charmed page on Facebook and they also have a new website at http://www.twocharmed.shop 

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Lupus Awareness Month:May

Your Guide to Lupus Awareness Month

Throughout the month of May, Lupus Ontario will be working to spread awareness of lupus, through webinars, podcasts, videos, publications, press releases, email/social media campaigns and the illumination of key buildings and monuments across the province.

Some key dates to look out for:

    • May – is Lupus Awareness Month. Help us spread awareness about Lupus, all month long. Visit our social media accounts to find sharable information about lupus. 
    • May 10th – Lupus Awareness Day – Join the #LightsforLupus movement by taking and posting a picture at one of the illuminations across Ontario and tag us on social media with the hashtag #LightsforLupus
    • May 18th –  Webinar at 7 p.m. with Dr. Touma 

Building Illuminations

2023 Lights for Lupus Landmarks:

  • Windsor City Hall
  • Sarnia City Hall
  • City Hall of London
  • JA Taylor Building, London
  • RBC Place London
  • Canada Life Centre, London
  • Sifton Properties at 195 Dufferin Avenue, London
  • Penman’s Dam, Paris
  • Niagara Falls
  • Peace Bridge, Fort Erie
  • Brock University’s Schmon Tower, St. Catherines
  • Brant Street Pier, Burlington
  • Hamilton Sign
  • Carl Zehr Square, Kitchener
  • Market Square, Guelph
  • Vaughan City Hall
  • Riverwalk Commons, Newmarket
  • Fred A. Lundy Bridge, Newmarket
  • Brampton Clock Tower
  • Mississauga Clock Tower
  • Port Credit Lighthouse, Mississauga
  • 50 & 60 Absolute World Condos, Mississauga
  • CN Tower, Toronto
  • Peterborough City Hall
  • Bracebridge Falls
  • Collingwood Town Hall Clock Tower
  • BLUE Sign, Blue Mountain Village, Collingwood
  • Belleville Sign
  • Bridge Street Bridge, Belleville
  • Fire Station Memorial, Belleville
  • Kingston City Hall
  • Springer Market Square, Kingston
  • Ottawa Sign
  • Shaw Centre, Ottawa
  • Timmins Sign Transit Station
  • Timmins Sign Timmins Museum
  • Cochrane Sign
  • Sudbury Big Nickel
  • Quinte West Sign
  • Gateway to the Trent-Servern Waterway Bridge
  • Imperial Theatre, Sarnia
  • Bluewater Power Distribution Corporation, Sarnia

Lupus Awareness Day

May is Lupus Awareness Month, with May 10th being both World Lupus Day (internationally) and Lupus Awareness Day in Ontario. In an effort to raise awareness Lupus Ontario has created a media kit

Lupus Awareness Day - Illuminations

Join the #LightsforLupus movement by taking and posting a picture at one of the illuminations across Ontario and tag us on social media with the hashtag #LightsforLupus
Download Media kit

Lupus Awareness Month

May is Lupus Awareness Month! Join us as we shine a light on important facts about Lupus all month long. Let's work together to achieve a life without Lupus #lifewithoutlupus

Lupus Awareness Month

We're on a mission to raise awareness and find a cure for Lupus. Help us amplify our message by sharing the resources in our media kit.
Download Media kit
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Latest News

Latest News

Your Resource for the Latest News!

We seek to keep you updated on the latest Lupus News, Research, Press Releases and Clinical Trials.

Lupus Ontario is now an official Affiliate Member of the CSPA

The Canadian Skin Patient Alliance (CSPA) is a national non-profit organization dedicated to advocate, educate and support Canadians living with skin diseases, conditions, and traumas. We support and collaborate with Canadian patient groups and organizations that deal with specific skin disorders. By working together, we advocate for the needs of skin patients across the country and provide a broad range of education and support.

2024-2025 Geoff Carr Lupus Fellowship

The annual Fellowship is designed to provide advanced training to a rheumatologist specializing in lupus at an Ontario Lupus Clinic. The Lupus Fellow will follow patients at an accredited lupus clinic, supervise patient care and education, and become involved in clinical research. The stipend attached to the Geoff Carr Lupus Fellowship will be $72,000 CAD for one year. Candidates must arrange their own place of training at an accredited Lupus Clinic in Ontario.

The successful candidate will likely have completed his/her core training in Internal Medicine or Pediatrics and have completed a minimum of two years in rheumatology.

Awards are made on the recommendation of Arthritis Society Canada’s review panel. Lupus Ontario administers the Fellowship.

New data on SAPHNELO, a promising biologic for lupus

SAPHNELO data show patients are more likely to achieve and sustain remission in systemic lupus erythematosus compared to standard therapy alone

In Loving Memory of Honey Agar

With heavy hearts, we share the news of the passing of Lupus Ontario’s founder, Honey Agar, on September 30th, 2023.

 

Learn more about our amazing founder.

COVID-19 TRIAL NOW ENROLLING PARTICIPANTS

The study is open to adults who

  • Tested positive for COVID with symptoms starting within the last 5 days and
  • Aged 18–49 years with chronic condition(s) or 50+ years regardless of health status

Eligible participants will

  • Take a COVID medication approved by Health Canada or follow public health advice on COVID
  • Complete an online diary from Day 1 to 14
  • Complete a survey on Day 21, 28 and 90 and Week 36
  • Receive $30 for each follow-up

Participation is voluntary.

Call for Abstracts

Have you heard? The 2023 Lupus Ontario Annual Symposium Call for Abstracts has launched!

The theme this year is Caring for All. Known as the disease of a thousand faces, we will highlight the disparities in diagnosing and treating lupus including:

  • Ethnicity and issues of race in lupus diagnosis
  • Caring for lupus patients in northern and rural Ontario
  • Growing-up with lupus: Transition from pediatric to adult care
  • Improving Access and Enhancing Care: Physician Education and Best Practices
  • And more!

Lupus Awareness Month

May is Lupus Awareness Month, with May 10th being declared Lupus Awareness Day in Ontario. Take a look at what is being illuminated to spread awareness in Ontario. 

Find our Media Kits with resources to help spread awareness. 

 

Walk For Lupus Ontario Media Kit -

Social Media Posts, Captions, Video and Articles for you to share! 

12-year-old sisters start business supporting Pediatric Lupus Clinic

In April and May proceeds will support the Pediatric Lupus Clinic at SickKids Hospital

 

 

EVUSHELD™ receives Health Canada approval

 EVUSHELD™ RECEIVES HEALTH CANADA APPROVAL FOR PRE-EXPOSURE PROPHYLAXIS (PREVENTION) OF COVID-19 IN IMMUNE-COMPROMISED INDIVIDUALS

Geoff Carr

Tribute For Dr. Urowitz

Honouring Dr. Dr.Murray B Urowitz on his retirement! Thank you for all you have done for the Lupus Community.

SHINGRIX approved in Canada for adults at increased risk of shingles

GSK PRESS RELEASE – SHINGRIX approved in Canada for adults at increased risk of shingles due to immunodeficiency or immunosuppression

 

GOC signs new COVID-19 antibody therapy agreement

PRESS RELEASE – from Public Services and Procurement Canada.

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Podcast

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Lupus Ontario Autoimmune Panel Discussion:

November 27, 2021

Our special guests were: 

Linda Keill, President of Lupus Ontario

Dr. Leslie Laing, President of Sjogren’s Society of Canada

Jan Nitti, Board of Directors with Raynaud’s Association of America

Jacqueline Fraser, Fibromyalgia London Group

Danielle Hogg, Occupational Therapist with the Arthritis Society

Overview 

Each panelist provided a 15-minute presentation introducing their role and organization. They then discussed what support/resources/activities they offer their members and how our members can get involved.  There was also a 20-30 minute question and answer period at the end of all the presentations.  

Download PDF’s of the Presentations:

Arthritis Society PDFRaynaud’s Association of America PDFSjogrens Society of Canada PDFFibromyalgia London Group PDF

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